Lewy Body Dementia: Information for Patients, Families, and Professionals
– This publication, by the National Institutes of Health, is an excellent, detailed pamphlet that can be ordered through the National Institute on Aging at 800-438-4380 (publication #13-7907) or it can be downloaded here:
A Caregiver’s Guide to Lewy Body Dementia by Helen Buell Whitworth “MS BSN” and James Whitworth https://www.amazon.com/Caregivers-Guide-Lewy-Body-Dementia/dp/193260393X/ref=tmm_pap_swatch_0?_encoding=UTF8&qid=1536867644&sr=1-1
– This guide offers very detailed, specific, and helpful information.
– This book has been around for a long time because of it’s important, insightful information on caregiving.
Treasures in the Darkness: Extending the Early Stage of Lewy Body Dementia by Pat Snyder
Former caregiver Pat Snyder offers the only book written that addresses the topic of enhancing and extending the early stage of LBD. If you are an early stage caregiver, this story may help you. It has tips on how to make a difference.
Living with Lewy Body Dementia by Judy Towne Jennings, PT, MA
Geriatric physical therapist and former LBD caregiver, Judy Towne Jennings, gives indepth, personal insight on how best to handle all facets of Lewy Body Dementia.
When Family Calls: Finding Hope in the Chaos of Long Distance Caregiving by by Caroline H. Sheppard – https://www.carolinehsheppard.com/
Long distance caregiving can be challenging–and one of the most rewarding experiences of your life. “Filled with insight, heart and tons of practical information.”
How to Have Fun with your Aging Parents by Christina Britton Conroy
A step-by-step manual for adults who love and care for older adults. Wonderful, helpful ideas. –
Same Destination . . . Different Journey: Lewy Body Dementia: Our Journey by Emma Haslegrave – easily purchased through Amazon.com – From the authors: This book includes all the key information that you will need if you or a loved one is affected by dementia with Lewy bodies. Information, sadly, we often learnt far too late.
Managing Cognitive Issues in Parkinson’s and Other Lewy Body Disorders – This is about the non-motor symptoms like hallucinations that warn of LBD in the future, and how to deal with them with fewer drugs. This book is available on our website and on Amazon.
Lewy, Mom, and Me: A Caregiver’s Story by Peggy Bushy
When her mother developed Lewy body dementia, Peggy found a distinct lack of knowledge and support from the medical community. Hoping to provide this support for others, she was inspired to write Lewy, Mom, and Me.
Parkinson’s: A Love Story with Dementia for Dessert by Ava S. Butler
Ava’s husband Richard was diagnosed with Parkinson’s and then with Lewy Body Dementia. For the next seven years, Ava wages war against these bad boys, writing her reflections and journaling her experiences as she tries everything she can find to help Richard.
The Unexpected Journey: A Memoir by Hennie Friedman
For nearly thirty years, Moish and Henie lived the perfect life until in 2008 he was diagnosed with LBD at the young age of 57. Everything changed for Moish, for Hennie, and their entire family.