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Driving with Lewy body dementia is dangerous, and it becomes more dangerous as the disease progresses. Most families know this, but the conversation about when to stop is one that many put off longer than they should. Your loved one may have been driving for fifty years, and the car likely represents independence, competence, and […]
Delusions and paranoia are among the most distressing symptoms of Lewy body dementia (LBD). A person with LBD might accuse family members of stealing, insist their spouse has been replaced by an imposter, or become convinced that someone is trying to harm them. These aren’t simply moments of confusion. They’re fixed false beliefs that feel […]
Ted Turner, the founder of CNN and one of the most influential figures in the history of American media, died peacefully on May 6, 2026 at his home in Lamont, Florida. He was 87 years old. Ted Turner had revealed in 2018 that he had Lewy body dementia. Turner built a media empire that included […]
If you or someone you love has Lewy body dementia, you already know how hard it is to explain your situation to people who have not been through it. The confusion at diagnosis, the symptoms that shift from hour to hour, the isolation that builds quietly while you try to keep everything together. A new […]
When someone you love is diagnosed with Lewy body dementia (LBD), one of the first questions you ask is why. What caused this? Could it have been prevented? The honest answer is that scientists don’t fully understand why some people develop LBD, and others don’t. But research has identified what happens in the brain and […]
The Doctor Visit by Pamela Rosenblum Once a person has been diagnosed with Lewy body dementia (LBD), it is important to establish a good working relationship with the specialist, usually a neurologist, who is involved in their care. Because of the nature of LBD, the visit with the physician […]
Getting the right Lewy body dementia diagnosis can take months or even years. You’ve watched your loved one struggle with symptoms that don’t quite fit what doctors are telling you. First, they said Alzheimer’s, but the hallucinations started early, and the confusion comes and goes unpredictably, not the gradual, stage-by-stage decline that Alzheimer’s typically follows. […]
Nathalie Baye, one of France’s most celebrated actresses, died on April 17, 2026, at her home in Paris. She was 77. Her family confirmed that she had been diagnosed with Lewy body dementia, and French media reported that her condition had worsened significantly since the summer of 2025. Baye had a career spanning more than […]
If you’re reading this, you or someone you care about may be experiencing confusing symptoms that doctors haven’t been able to explain clearly. Perhaps you’ve been told it’s Alzheimer’s disease, but the symptoms don’t quite fit. Or maybe you’re seeing changes in thinking, movement, or sleep that seem to come and go in ways that […]
Living with Lewy body dementia (LBD) means facing hard questions, and whether your loved one can safely live alone is one of them. If someone you love has LBD, you’re probably struggling with this right now. They may insist everything is fine. You may see signs that suggest otherwise. There’s no easy answer. Some people […]
Please call our Helpline at 516-218-2026
or email us at norma@lbdny.org
and we will be happy to help you with resources in your State.