resources for caregivers
When Should Someone with Lewy Body Dementia Stop Driving?
Driving with Lewy body dementia is dangerous, and it becomes more dangerous as the disease progresses. Most families…
Bringing awareness and supporting with love
The second most common form of progressive dementia in the United States after Alzheimer’s disease. Affects several million families in America and over 11 million worldwide
LBD involves abnormal protein deposits that disrupt brain function — affecting movement, thinking, sleep, and behavior simultaneously.
It is widely misdiagnosed, mimicking Alzheimer's, Parkinson's, or a psychiatric disorders
The average patient sees 3+ doctors before a correct diagnosis.
Certain medications safe for other conditions can be life-threatening for LBD persons. Accurate diagnosis and medication awareness is critical.
— About the Disease
Lewy body dementia is an umbrella term for two related diagnoses — dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD).
Despite being the second most common form of progressive dementia, LBD is vastly under recognized. Families often spend years searching for answers. We’re here to help you find them faster.
The Lewy Body Dementia Resource Center was founded specifically to fill that void — providing free information, real human support, and a community that understands what you’re going through.
— How We Can Help
Just received a diagnosis and not sure where to start? We’ll walk you through what LBD means, what to expect, and what to do first.
Caring for someone with LBD is one of the hardest things a person can do. Find support groups, practical guides, respite care, and people who understands
Clinical resources, specialist directories, medication safety guidance, and educational tools to help you better diagnose and support LBD people.
Awareness. Support.Community.
LBDRC exists to raise awareness of Lewy body dementia, offer loving support to patients and care partners, and build a community where no family has to face this disease alone.
Educating the public and healthcare professionals about this often-misunderstood disease.
A live helpline, support groups, and caregiving resources — always free, always human.
Connecting families with others who truly understand — because no one should face LBD alone.
Founder Norma Loeb explains what sets LBDRC apart — our deeply personal approach, our live helpline, and why community is at the heart of everything we do.
— Expert Interview
Founder Norma Loeb sits down with Dr. Ward Bond to share essential tips, resources, and compassionate guidance for every family navigating a Lewy body dementia diagnosis.
"Norma Loeb is one of the most knowledgeable people about LBD you will find who is not a doctor. And her energy and commitment should be bottled — the world could really use it."
After caring for her mother through her LBD journey — and experiencing firsthand how little support existed — Norma founded LBDRC to change that for every family that comes after. She is widely recognized as one of the foremost non-physician experts on Lewy body dementia in the country.
For caregivers, people living with lbd. All are welcome.
📖Our most comprehensive resource — everything to understand LBD.
📖Our most comprehensive guide for caregivers
🎙️Expert-led conversations and firsthand stories from the LBD community.
📋Track fluctuations over time and share with your care team.
🆘Carry this card — it could be life-saving in an emergency situation.
🃏Specially designed cards to help people with LBD express their needs.
💊Know which drugs are dangerous — critical for every LBD patient.
🔍Worldwide directory of movement disorder specialists who know LBD.
🏡Home and community-based care options anywhere in the U.S.
For caregivers, people living with lbd. All are welcome.
📖Our most comprehensive resource — everything to understand LBD.
📖Our most comprehensive guide for caregivers
🎙️Expert-led conversations and firsthand stories from the LBD community.
📋Track fluctuations over time and share with your care team.
Carry this card — it could be life-saving in an emergency situation.
🃏Specially designed cards to help people with LBD express their needs.
💊Know which drugs are dangerous — critical for every LBD patient.
🔍Worldwide directory of movement disorder specialists who know LBD.
🏡Home and community-based care options anywhere in the U.S.
Driving with Lewy body dementia is dangerous, and it becomes more dangerous as the disease progresses. Most families…
Delusions and paranoia are among the most distressing symptoms of Lewy body dementia (LBD). A person with LBD…
Ted Turner, the founder of CNN and one of the most influential figures in the history of American…
Founded by Norma Loeb, LBDRC provides free support, education, and community to individuals and families navigating Lewy body dementia — across the U.S. and around the world.
📞The information on this website and our Helpline is provided as a resource for LBD caregivers, but is not intended as an endorsement of any product, medication, or medical procedure, and is not a substitute for professional medical advice.
© 2026 Lewy Body Dementia Resource Center. All Rights Reserved.