Dear LBDRC Families,
During this holiday season, I am writing to share why I founded the Lewy Body Dementia Resource Center (LBDRC) almost 10 years ago. Since experiencing the difficulty and frustrations of being caregiver to my wonderful mother, Lillian, who had Lewy body dementia (LBD) for many years, I wanted to help as many families struggling with this disease as possible. In addition to bringing critical AWARENESS of this devastating disease, it was important to me that we provide LBD families with love, support, and a sense of community. No person living with LBD, or their caregivers, should have to face this experience alone.
For many years, I handled most incoming calls on my own and led the only support group in the New York metro area. I am proud to say that now, with the dedicated help of our nine “lived experience” volunteers working tirelesslyfor the helpline and with support groups, the LBDRC is able to offer:
· The only live Helpline for LBD in the United States, available 365 days a year
· Two national/international support groups for people living with LBD; five national LBD caregiver support groups; and a new international LBD caregiver support group with people attending from as far away as Indonesia and Europe
· A new Helpline option to connect internationally on WhatsApp for one-on-one support
· LBD Information on our website (lbdny.org)in 11 languages; plus a video series, webinars, podcasts, and much more
· We are the fiscal sponsor of Facing the Wind, the award-winning documentary depicting the struggles of LBD families.
· LBDRC has a truly respected, committed Board of Directors consisting of neurologists, a geriatrician, a neuropsychologist, a geriatric nurse practitioner, as well as seasoned professionals in law, public relations, and health care policy. All are experts on LBD. We also have an Advisory Board of professionals who had a family member with LBD and individuals currently living with the disease.
This is the only time of year I ask for your kindness and generosity in helping the Lewy Body Dementia Resource Center to continue its work. All of our services have been and will continue to be FREE. We at LBDRC–all former caregivers of a family member who had LBD–know how important it is to give help with loving care.
Together, we can increase awareness, educate the medical community, promote scientific research, create programming for a better quality of life, and provide an unparalleled level of love and support to as many families as possible. Will you please help us and make a donation?
Donations can be made on our website at: https://lewybodyresourcecenter.org/donate/
OR, checks can be mailed to:
Lewy Body Dementia Resource Center
28 Highwood Drive
Northport, NY 11768
Please know we are also set up to receive recurring monthly donations and would be grateful to receive what you can afford. LBDRC can also take gifts of stock and other securities. If you have any questions, please don’t hesitate to email me at norma@lbdny.org.
In advance, THANK YOU for supporting our work. As so many have told us, “LBDRC is a lifeline.”
On behalf of the Lewy Body Dementia Resource Center, I wish you and your family peaceful holidays, special moments, and a happy and healthy 2026.
Love and peace,
Norma
Norma Loeb, Founder & Executive Director
