Bringing awareness and supporting with love
Stories told through video.
Documentary series, personal journeys, and educational content from LBDRC.
🎬 Views From Within: A Lewy Body Video Series
This exclusive LBDRC video series presents firsthand experiences of people living with LBD, their caregivers, and expert physicians. Crucial information about the multiple symptoms, stages, and difficulties LBD families face is shared for healthcare professionals and the general public.
EARLY SIGNS & MISDIAGNOSIS (16 mins)
COGNITION ISSUES (9 mins)
MOVEMENT ISSUES (12 mins)
SLEEP ISSUES (11 mins)
HALLUCINATIONS & DELUSIONS (20 mins)
AUTONOMIC SYSTEM (20 mins)
FLUCTUATIONS (19 mins)
BEHAVIOR ISSUES & MEDICATIONS (15 mins)
HOW TO SPEAK TO SOMEONE WHO HAS LEWY BODY (19 mins)
DIFFICULTIES & BLESSINGS (23 mins)
TOTAL LBDRC VIDEO SERIES (all of the above in one video – 2-1/2 hours)
Expert-led webinars on LBD.
Live and recorded sessions with neurologists, researchers, and caregivers covering diagnosis, treatment, caregiving strategies, and the latest in LBD research.
Mary Lou Falcone: Scenes of Love, Loss and Lewy Body Dementia
Classical Music Publicist and Author of “I Didn’t See It Coming” shares her story.
Dr. Leon Meytin: Q&A About LBD
Movement Disorder Neurologist at Hartford HealthCare in Connecticut answers questions about LBD.
Dr. Jori Fleisher: LBD and the PERSEVERE Study
Movement Disorder Neurologist at RUSH University in Chicago discusses LBD and the PERSEVERE study for caregivers.
Brain Donation Webinar with Nori Goldsmith and Dr. Vahram (Harry) Haroutunian
Former caregiver Nori Goldsmith shares her personal experience with the brain donation process and the lasting impact it has had on her journey. Dr. Vahram (Harry) Haroutunian, a pathologist at Mount Sinai in New York, answers questions about the scientific significance and helps alleviate concerns about the process.
Care Connection Webinar: Lewy What? What is Lewy Body Dementia?
The following webinar was presented by the Alzheimer’s Foundation of America and features Norma Loeb and Mary Lou Falcone on What is Lewy Body Dementia and how do you, Healthcare Professionals and Caregivers, deal with it?
Self Care For Caregivers – Stress
We are happy to present another special webinar for caregivers. Presented by Pamela Rosenblum, we discuss anxiety, insomnia, and other indicators of stress exhibited by caregivers.
“What Is An End Of Life Doula?” Webinar November 22, 2023
“Birth and death are the sacred bookends to our lives. We prepare so thoughtfully for one, and not at all for the other.”
Speech Therapist Webinar October 23, 2023
Lara Scher, Speech Therapist, offers suggestions for people living with LBD on how to boost confidence and communication in daily living. She also gives very helpful information for caregivers.
🎬Gala Videos
This exclusive LBDRC video series presents firsthand experiences of people living with LBD, their caregivers, and expert physicians. Crucial information about the multiple symptoms, stages, and difficulties LBD families face is shared for healthcare professionals and the general public.
EARLY SIGNS & MISDIAGNOSIS (16 mins)
COGNITION ISSUES (9 mins)
MOVEMENT ISSUES (12 mins)
SLEEP ISSUES (11 mins)
HALLUCINATIONS & DELUSIONS (20 mins)
AUTONOMIC SYSTEM (20 mins)
— Podcasts
Interviews, personal stories, and expert insights from the LBD community.
Interview with Norma for the CLBDI Talks series. June 2025.
Two high school freshmen from California, both aspiring neurosurgeons, invited Norma as a guest. May 2025.
CEO Lisa Ricciardi interviews Norma Loeb and Mary Lou Falcone for their podcast series.
Facing The Wind at Lincoln Center November 18th, 2024
On November 18th, 2024, LBDRC held a fundraising event with private screening of the documentary film “Facing The Wind” and cocktail reception at the Walter Reade Theater at Lincoln Center in NYC. The videos below contain opening remarks by Mary Lou Falcone and Norma Loeb, LBDRC board member and founder & executive director respectively. The Q&A following the film is shown in the second video.
Founder Norma Loeb EXPLAINS Lewy Body Dementia Tips You Need to Know!
Discover essential tips and insights about Lewy body dementia from Norma Loeb. In this interview with Dr Ward Bond, she shares her expertise, compassionate advice, and key resources for caregivers and families navigating this journey.
Hello From Heaven
Kennedy Morgan, a spirit medium and a friend, interviews Norma about LBD for his first “Hello From Heaven” podcast – October, 2022
Conversations Episode 4
– Insights for the Primary Care Physician: Recognizing DLB
International LBD Conference in the UK, June, 2022
– Living With Lewy Body
Robin’s Wish at Lincoln Center
– Arrival and Opening Remarks
Robin’s Wish at Lincoln Center
– Q&A with Susan Schneider Williams & Director Tylor Norwood
LBDRC/SUNY Event
Other Lewy Body Dementia Resources
Lewy Body Dementia
– Some Interesting Facts by XpertDox
The Science of Lewy Body Dementia
Excellent 4 minute video about LBD by SciShow.com entitled, “Robin Williams and the Science of LBD”
“What’s The Difference?”
– Panel hosted by Renewal Memory Care – Panelists include: Norma Loeb of LBD Resource Center, Jamie Eberling of Michael J. Fox Foundation, Greg Drapkin of the Alzheimer’s Association
Audio
Interview with Meryl Comer about breaking through the silence and stigma of Lewy body dementia.
Listen on Player.fm →Interview on the Louie B. Free radio show discussing LBD awareness and LBDRC's mission.
Listen on Spreaker →Named #1 Alzheimer's Podcast in 2022. Norma discusses how LBD is on the increase and the growing support available.
Listen on BlogTalkRadio →Interview about providing resources and support for people living with LBD.
Listen at A2A Alliance →Norma discusses founding the Lewy Body Dementia Resource Center and the resources available.
Listen on Buzzsprout →Episode 10: Lewy Body Dementia, Supporting With Love.
Listen on Apple Podcasts →Discussion on the affects of dementia (beginning at the 12:00 mark).
Listen on WABC →Discussion about Lewy body dementia on the Cat Radio Cafe.
Norma discusses Lewy body dementia awareness and resources.
At just 16, Paola was caring for her mother who showed signs of dementia. She shares her struggle with depression and how she helped herself and her mother, since diagnosed with LBD.
Listen at Latino USA →Writer and performer Jamie Brickhouse shares the story of his mother Mama Jean's Lewy body dementia and its effects. Recorded live in December 2017.
Listen on SoundCloud →
Founded by Norma Loeb, LBDRC provides free support, education, and community to individuals and families navigating Lewy body dementia — across the U.S. and around the world.
📞The information on this website and our Helpline is provided as a resource for LBD caregivers, but is not intended as an endorsement of any product, medication, or medical procedure, and is not a substitute for professional medical advice.
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