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HELPLINE: 516-218-2026 or 833-LBD-LINE
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What is Lewy Body Dementia?

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Hebrew

What are LBD symptoms?

English
Español
Hebrew

Support Groups

Details

Video & Audio

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“Norma Loeb is one of the most knowledgeable people about LBD you will find who is not a doctor. And, her energy and commitment should be bottled—the world could really use it!”

– Susan Schneider Williams (wife of Robin Williams)


We have the only live Helpline for LBD in the United States. Please call:

516-218-2026 or
833-LBD-LINE

Download an LBDRC Medical Alert Card

5 EARLY SIGNS OF LEWY BODY DEMENTIA

Differences Between Lewy body dementia,
Alzheimer’s disease and
Parkinson’s disease

En español

Worldwide Directory of MOVEMENT DISORDERS SPECIALISTS

The most requested resource of LBD families is finding physicians who can help with diagnosis and treatment. This WORLDWIDE Directory of Movement Disorder Specialists, made available by the International Parkinson and Movement Disorder Society, can make that search much easier:

Worldwide Directory of MOVEMENT DISORDERS SPECIALISTS

Welcome to our site

Lewy body dementia (LBD) is the second most common form of progressive dementia, affecting more than 1.4 million Americans. Because LBD comes with a host of physical, cognitive and behavioral symptoms, it often mimics Alzheimer’s disease, Parkinson’s disease or a psychiatric disorder. As a result, it is widely misdiagnosed. Even as diagnoses increase, resources for people with LBD and their families still remain extremely limited. Citing this lack of resources and assistance, the Lewy Body Dementia Resource Center was founded to provide much needed services and support for people with LBD and their loved ones.


Testimonials

“I am so thankful to you and the Lewy Body Dementia Resource Center. I never felt alone. I never felt misled. And I never felt I didn’t have the tools or the knowledge. I then was able to help others around me to understand and felt comfortable with my decisions.” – Paola S.

“I wanted to express my gratitude for your endless fight for LBD patients and caregivers. The resources you provide have been invaluable to me as I cared for my husband.” – Nancy D.

 

International Pages

Lewy body dementia affects people worldwide. It has no borders, and neither do we. We have begun to share our resources with the international community. The following pages are now available in Spanish and Hebrew. More languages to come.

 

SPANISH
  • ¿QUÉ ES LA DEMENCIA
    CON CUERPOS DE LEWY?
  • SIMPTOMAS   
  • DIAGNOSTICO   
  • TRATAMIENTO   
  • MEDICAMENTOS   
  • TRANSICIONES
  • 5 SIGNOS TEMPRANOS DE DEMENCIA
    CON CUERPOS DE LEWY
  • DIFERENCIAS ENTRE LA DEMENCIA
    CON CUERPOS DE LEWY,
    LA ENFERMEDAD DE ALZHEIMER Y
    LA ENFERMEDAD DE PARKINSON

 

HEBREW
  • What is LBD?
  • Symptoms
  • Diagnosis
  • Treatment
  • Medications
  • Transitions
  • Reserach and Clinical Trials

 

FRENCH

For those looking for information in French we suggest: Association des Aidants et Malades à Corps de Lewy

 

Lewy Body
Roller Coaster

This is a weekly podcast for LBD patients and their families presented by LBD patients and their families. Hear firsthand the ups and downs and twists and turns of LBD from families directly affected as support and experiences are shared. Hosted by Linda and Curry

LBDRC In The News

GUIDE STAR PLATINUM SEAL OF TRANSPARENCY

  • Our Mission
  • Creating Community
  • Purpose
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*Disclaimer* The information on this website and on our Helpline is provided as a resource for LBD caregivers, but it is not intended as an endorsement of any one product or provider, medication or medical procedure, and is not meant as a substitute for any medical or other professional advice.

Our Mission

LBDRC’s mission is to raise much-needed awareness of LBD through the dissemination of information to health care professionals and the general public, while offering loving support and services to people with LBD and their care partners. By promoting these efforts, as well as early detection and diagnosis, we aim to help those living with LBD and their families find the quality support they desperately need while advocating for increased funding and research. A large part of our mission will focus on outreach and speaking engagements in order to educate the healthcare community and the public on this little known disease. This enables better quality of life for those with LBD, their caregivers and their loved ones.

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Creating Community

Key to the essence of LBDRC is a sense of community for those affected by LBD. Here you’ll find essential information, recommendations and resources to help you manage LBD and its impact on day-to-day life. Through comprehensive resources and personal insights from others who have experienced LBD first-hand, you’ll find the understanding you need to cope with this disease, along with the love, support and know-how to help you and your family through the twists and turns that may lay ahead. LBDRC is headed by a team familiar with the impacts of LBD. We have all been care partners to people living with this disease. Our board includes experts in the field as well as those who have been personally impacted by LBD.

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Purpose

The Lewy Body Dementia Resource Center was formed for the purpose of raising crucial awareness of Lewy body dementia (LBD) and to offer urgently needed help in New York for the many families who have lacked the services they need primarily because people do not know of the disease.

Lincoln Center Event Photos

*Disclaimer* The information on this website and on our Helpline is provided as a resource for LBD caregivers, but it is not intended as an endorsement of any one product or provider, medication or medical procedure, and is not meant as a substitute for any medical or other professional advice.
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    Key to the essence of LBDRC is a sense of community for those affected by LBD. Here you’ll find essential information, recommendations and resources to help you manage LBD and its impact on day-to-day life. Through comprehensive resources and personal insights from others who have experienced LBD first-hand, you’ll find the understanding you need to cope with this disease, along with the love, support and know-how to help you and your family through the twists and turns that may lay ahead.

    View our past newsletters here.

     

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    Lewy Body Dementia Resource Center of New York

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    Our support Helpline is available 12 Hours a day, 7 days a week.

    Monday–Sunday: 8am to 8pm

    Mailing Address

    750 West Broadway
    Suite 2R
    Long Beach, NY 11561

    Phone: 516-218-2026
    Email to: [email protected]
    Copyright © 2021 Lewy Body Dementia. All Rights Reserved.
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