You’re trying to understand the difference between Parkinson’s and Lewy Body Dementia, and what it means for someone you love. Maybe a doctor mentioned Parkinson’s disease at one appointment and Lewy body dementia at another. Maybe you have been reading about one condition and keep seeing the other mentioned. Maybe the diagnosis itself is unclear […]

The doctor diagnosed your loved one with Alzheimer’s disease. But something doesn’t quite fit. They’re seeing people who aren’t there. Their thinking seems sharp one moment and confused the next. They’ve developed a tremor that wasn’t mentioned in anything you read about Alzheimer’s. What you might actually be dealing with is Lewy body dementia, a […]

If you’re reading this, you or someone you care about may be experiencing confusing symptoms that doctors haven’t been able to explain clearly. Perhaps you’ve been told it’s Alzheimer’s disease, but the symptoms don’t quite fit. Or maybe you’re seeing changes in thinking, movement, or sleep that seem to come and go in ways that […]

The end stage of Lewy Body Dementia (LBD), is when symptoms are no longer just occasional or subtle; they become a central part of everyday life. For families, knowing what the late stages of LBD looks like can make it easier to plan care, and manage expectations. What “Late Stage” Really Means in Lewy Body […]

Lewy Body Dementia (LBD) is the second most common type of progressive dementia after Alzheimer’s, affecting over 1.4 million people in the U.S. It often starts subtly, with changes that are easy to miss at first. Over time, it can lead to serious memory, movement, and functional decline, eventually requiring full-time care. To help families […]

In our support groups we often talk about home health aides, companions, etc. This kind of help is very important but often difficult to figure out. But at a recent caregivers’ support group another kind of help was discussed that is fairly easy to arrange and worth doing. It is not unusual to hear from […]

With the likelihood of heat waves on the rise, it is particularly important to be aware of the impact of extreme heat on people with Lewy body dementia (LBD). LBD on its own has a disruptive impact on the Autonomic Nervous system (the automatic part of our nervous system that regulates many of the body’s […]

Written by M of NY, a Caregiver to her Husband: Several years ago, my husband began, some evenings, yelling and laughing, punching the air, and flailing his arms and legs around in his sleep–even once throwing himself into a corner of the nightstand. Other times, he had minor muscle jerks in his hands and legs, […]