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Your loved one used to light up when the grandchildren visited. They had hobbies they cared about, opinions they shared freely, plans they looked forward to. Now they sit quietly, showing little interest in anything. They don’t seem sad exactly, but they don’t seem like themselves either. What you’re seeing might be depression, apathy, or […]
Key Takeaways Robin Williams was not diagnosed with Lewy body dementia during his lifetime. His autopsy revealed one of the most severe LBD cases pathologists had seen. He died believing he had Parkinson’s disease and depression. His symptoms were classic LBD but went unrecognized. Anxiety, depression, sleep problems, paranoia, cognitive changes, and movement symptoms all […]
Click Here For Spanish Version of This Page / Versión en español de esta página Nobody expects to become an expert on Lewy body dementia (LBD). Yet here you are, searching for answers because something feels off with someone you love. Maybe it’s been a slow realization over months, or perhaps a sudden change sent […]
REM sleep behavior disorder, often called RBD, is one of the most common symptoms in Lewy body dementia. More than 75% of people with Lewy body dementia experience it at some point, and for many people, it shows up years before any cognitive or movement problems begin. In RBD, people physically act out their dreams. […]
You’re trying to understand the difference between Parkinson’s and Lewy Body Dementia, and what it means for someone you love. Maybe a doctor mentioned Parkinson’s disease at one appointment and Lewy body dementia at another. Maybe you have been reading about one condition and keep seeing the other mentioned. Maybe the diagnosis itself is unclear […]
You can download a printable copy of this guide at Lewy Body Dementia Caregiver Guide Caring for someone with Lewy body dementia (LBD) changes your life in ways you never expected. As an LBD caregiver, you’ll watch the person you’ve known for years act differently, need help with things they used to do independently, and […]
The doctor diagnosed your loved one with Alzheimer’s disease. But something doesn’t quite fit. They’re seeing people who aren’t there. Their thinking seems sharp one moment and confused the next. They’ve developed a tremor that wasn’t mentioned in anything you read about Alzheimer’s. What you might actually be dealing with is Lewy body dementia, a […]
If you’re reading this, you or someone you care about may be experiencing confusing symptoms that doctors haven’t been able to explain clearly. Perhaps you’ve been told it’s Alzheimer’s disease, but the symptoms don’t quite fit. Or maybe you’re seeing changes in thinking, movement, or sleep that seem to come and go in ways that […]
The end stage of Lewy Body Dementia (LBD), is when symptoms are no longer just occasional or subtle; they become a central part of everyday life. For families, knowing what the late stages of LBD looks like can make it easier to plan care, and manage expectations. What “Late Stage” Really Means in Lewy Body […]
Lewy Body Dementia (LBD) is the second most common type of progressive dementia after Alzheimer’s, affecting over 1.4 million people in the U.S. It often starts subtly, with changes that are easy to miss at first. Over time, it can lead to serious memory, movement, and functional decline, eventually requiring full-time care. To help families […]
Please call our Helpline at 516-218-2026
or email us at norma@lbdny.org
and we will be happy to help you with resources in your State.