My wife passed away last year due to complications of Lewy body dementia (LBD). Naturally, I have spent much time reflecting on our life and her journey that we shared together. I have listened to many caregivers relay their stories and express their frustrations while caregiving. I hope that my reflection might offer a little […]
The Doctor Visit by Pamela Rosenblum Once a person has been diagnosed with Lewy body dementia (LBD), it is important to establish a good working relationship with the specialist, usually a neurologist, who is involved in their care. Because of the nature of LBD, the visit with the physician […]
Noting that tastes, likes and dislikes change and diminish appetites of many Lewy Body patients leaves the caregiver in a quandary. What should the goals be to slow the inevitable weight-loss, and how to do it while offering balanced meals? Over the past many months, I have noticed that my husband enjoys peanut-butter and jelly […]
Of the 50 million people living with dementia worldwide, approximately 1.4 million individuals in the United States are diagnosed with Lewy Body Dementia (LBD). This disease is the second most common type of progressive dementia, and the symptoms often mimic signs of other conditions. Those with LBD are frequently misdiagnosed with Parkinson’s disease since these […]
Approximately 50 million people across the globe are living with dementia, with an estimated 10 million new cases occurring each year. 1.4 million Americans are diagnosed with Lewy Body Dementia (LBD), which is a type of progressive dementia. As your loved one progresses through the Lewy Body Dementia stages, it may be helpful to seek […]
We are honored to have Dr. Jessica Zwerling join our Board of Directors and Medical Advisory Board. Dr. Zwerling is a neurologist and Associate Director for the Center for the Aging Brain at Montefiore Medical Center. WELCOME! Dr. Zwerling is a neurologist with board certification in neuromuscular disease and NIH T32 research/clinical fellowship training in […]
James E. Galvin, M.D., M.P.H. is one of the world’s leading experts in cognitive aging, dementia, and neurodegenerative diseases. Dr. Galvin is the Director and Founder of the Comprehensive Center for Brain Health. He is Professor of Integrated Medical Sciences and Associate Dean for Clinical Research at the Charles E. Schmidt College of Medicine, Florida […]
LBDRC is working with producers Liz Goodman and David Holden of Mission Critical Health, a non-profit production company that produces evidence-based public health and medical education. The first video produced features a brief introduction to the symptoms of LBD by Dr. James Galvin (see video).
WHAT IS THE LEWY BODY DEMENTIA RESOURCE CENTER (LBDRC)? The Lewy Body Dementia Resource Center (LBDRC) is a charitable 501(c)(3) non-profit organization created to provide personalized essential resources and information to people with LBD, caregivers, and medical professionals. Founder and Executive Director, Norma Loeb, launched LBDRC in New York to provide LBD families with information […]
WHAT ARE SYMPTOMS OF LEWY BODY? Visual hallucinations. They may include seeing shapes, animals or people. Movement disorders. Similar to Parkinson’s disease, slowed mobility, shuffling. Poor regulation of body functions (autonomic nervous system). Blood pressure, pulse, digestive and constipation. Cognitive problems. Similar to those of Alzheimer’s disease, such as confusion, poor attention, visual-spatial problems and […]
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