Incontinence with Dignity
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1.4 million Americans live with Lewy Body Dementia (LBD). A diagnosis for LBD may be difficult to determine, as this condition manifests with symptoms that are similar to other diseases (such as Parkinson’s disease). If your loved one has recently been diagnosed with Lewy Body Dementia, or you suspect that he or she may be on the way to a diagnosis, you may be curious about the criteria for detection. Here, we share what you need to know about how LBD is diagnosed.

Lewy Body Dementia presents with a host of symptoms, which often include hallucinations, changes in movement or gait, and sleep disorders. If you’ve noticed signs of LBD in yourself or someone you’re close to, the first step is to seek out a doctor who can help. Many individuals choose to see a family doctor, but it may be best to ask for a referral to a specialist, such as a neurologist or geriatric psychiatrist. Seeing a physician who specializes in brain and nervous system disorders may lead to an accurate and timely diagnosis.
Currently, no tests or scans can conclusively detect the presence of Lewy Bodies in the brain. However, there are several other criteria that doctors use to diagnose LBD. Neurological and physical exams are often performed when diagnosing Lewy Body Dementia, and these include:
Lewy Body Dementia symptoms often begin slowly, and it can be challenging to find the right diagnosis. If you’re on the search for a doctor who’s familiar with LBD, please browse our website for resources.
Coping with a diagnosis of LBD requires support from a community that understands the disease and its progression. If you’re ever in need of advice or a listening ear, we’re here to help. Our helpline is available seven days a week, so feel free to give us a call at 516-218-2026 or reach out via email.
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Founded by Norma Loeb, LBDRC provides free support, education, and community to individuals and families navigating Lewy body dementia — across the U.S. and around the world.
📞The information on this website and our Helpline is provided as a resource for LBD caregivers, but is not intended as an endorsement of any product, medication, or medical procedure, and is not a substitute for professional medical advice.
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