resurser för vårdgivare
När bör någon med Lewy body-demens sluta köra bil?
Att köra bil med Lewy body-demens är farligt, och det blir farligare i takt med att sjukdomen fortskrider. De flesta familjer…
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The second most common form of progressive dementia in the United States after Alzheimer’s disease. Affects several million families in America and over 11 million worldwide
LBD involves abnormal protein deposits that disrupt brain function — affecting movement, thinking, sleep, and behavior simultaneously.
It is widely misdiagnosed, mimicking Alzheimer's, Parkinson's, or a psychiatric disorders
The average patient sees 3+ doctors before a correct diagnosis.
Certain medications safe for other conditions can be life-threatening for LBD persons. Accurate diagnosis and medication awareness is critical.
— About the Disease
Lewy body dementia is an umbrella term for two related diagnoses — dementia with Lewy bodies (DLB) and Parkinson’s disease dementia (PDD).
Despite being the second most common form of progressive dementia, LBD is vastly under recognized. Families often spend years searching for answers. We’re here to help you find them faster.
The Lewy Body Dementia Resource Center was founded specifically to fill that void — providing free information, real human support, and a community that understands what you’re going through.
— How We Can Help
Just received a diagnosis and not sure where to start? We’ll walk you through what LBD means, what to expect, and what to do first.
Caring for someone with LBD is one of the hardest things a person can do. Find support groups, practical guides, respite care, and people who understands
Clinical resources, specialist directories, medication safety guidance, and educational tools to help you better diagnose and support LBD people.
Awareness. Support.Community.
LBDRC exists to raise awareness of Lewy body dementia, offer loving support to patients and care partners, and build a community where no family has to face this disease alone.
Educating the public and healthcare professionals about this often-misunderstood disease.
A live helpline, support groups, and caregiving resources — always free, always human.
Connecting families with others who truly understand — because no one should face LBD alone.
Founder Norma Loeb explains what sets LBDRC apart — our deeply personal approach, our live helpline, and why community is at the heart of everything we do.
— Expert Interview
Founder Norma Loeb sits down with Dr. Ward Bond to share essential tips, resources, and compassionate guidance for every family navigating a Lewy body dementia diagnosis.
"Norma Loeb is one of the most knowledgeable people about LBD you will find who is not a doctor. And her energy and commitment should be bottled — the world could really use it."
After caring for her mother through her LBD journey — and experiencing firsthand how little support existed — Norma founded LBDRC to change that for every family that comes after. She is widely recognized as one of the foremost non-physician experts on Lewy body dementia in the country.
For caregivers, people living with lbd. All are welcome.
📖Our most comprehensive resource — everything to understand LBD.
📖Our most comprehensive guide for caregivers
🎙️Expert-led conversations and firsthand stories from the LBD community.
📋Track fluctuations over time and share with your care team.
🆘Carry this card — it could be life-saving in an emergency situation.
🃏Specially designed cards to help people with LBD express their needs.
💊Know which drugs are dangerous — critical for every LBD patient.
🔍Worldwide directory of movement disorder specialists who know LBD.
🏡Home and community-based care options anywhere in the U.S.
For caregivers, people living with lbd. All are welcome.
📖Our most comprehensive resource — everything to understand LBD.
📖Our most comprehensive guide for caregivers
🎙️Expert-led conversations and firsthand stories from the LBD community.
📋Track fluctuations over time and share with your care team.
Carry this card — it could be life-saving in an emergency situation.
🃏Specially designed cards to help people with LBD express their needs.
💊Know which drugs are dangerous — critical for every LBD patient.
🔍Worldwide directory of movement disorder specialists who know LBD.
🏡Home and community-based care options anywhere in the U.S.
Att köra bil med Lewy body-demens är farligt, och det blir farligare i takt med att sjukdomen fortskrider. De flesta familjer…
Vrangforeställningar och paranoia hör till de mest plågsamma symtomen vid Lewy body-demens (LBD). En person med LBD…
Ted Turner, grundaren av CNN och en av de mest inflytelserika personerna i historien om amerikansk…
Nya artiklar, vägledning för vårdgivare, webbinarier och gemenskapsevenemang från Lewy Body Dementia Resource Center.
Founded by Norma Loeb, LBDRC provides free support, education, and community to individuals and families navigating Lewy body dementia — across the U.S. and around the world.
📞Informationen på denna webbplats och i vår telefonjour tillhandahålls som en resurs för vårdgivare till personer med LBD, men är inte avsedd som en rekommendation av någon viss produkt, medicin eller medicinsk åtgärd, och utgör inte heller någon ersättning för professionell medicinsk rådgivning.
© 2026 Lewy Body Dementia Resource Center. Alla rättigheter förbehållna.